When you hear the words “Parkinson’s” or “Alzheimer’s” most usually think of adults for early onset or more commonly, the elderly. When Deborah Vauclare’s son Léo was diagnosed with Infantile Neuroaxonal Dystrophy (INAD) at 2 years old during the summer of 2018 we soon learned that infants with INAD share a gene mutation with some forms of Parkinson’s and also have the same pathogenesis as Alzheimer’s and Lewy Body Dementia.
In an effort to treat Léo and other children affected with INAD as well as the potentially 50 million adults suffering from the aforementioned neurodegenerative diseases that are genetically linked to INAD, Deborah and her friend Emily Rogath Steckler founded Bisous For Léo, an ancillary arm of the INADCure Foundation. Together with Andrea of Sugar Bloom Cookie, our goal this holiday season is to raise raise funds and awareness for treatment and cure development. 50% of every Bisous For Léo cookie set purchased will directly benefit the cause.